It is a commonplace that there is no good way to announce a difference or a disability. What is important in the announcement is not so much what is said, as how it is said and above all how it might be understood . . . . Doctors are most often in the frontline here, but in fact the announcement concerns all the professionals who will support the parents and help them, in time, to gather their thoughts again. All the more so given that the “stunning” effects of the initial announcement will be relived at each stage of the child’s life. The well-known risk is that the child becomes identified only with their difference, with the reality of their disability—hence the absolute necessity that from the outset the child is situated within their gender identity and their familial and human history. The priority then will not be to establish measures for rehabilitation, but to offer humane support. Parents, professionals, philosophers, researchers, and lawyers all offer their reflections on making this journey with the parents and their child, beyond the stage of diagnosis, and without predicting a future defined by the pathology alone . . . .
- Uploaded on Cairn-int.info on 17/10/2014
- ISBN 9782749241876